https://doi.org/10.4081/mem.2018.533

Percorso assistenziale e scelte terapeutiche nella Sclerosi Laterale Amiotrofica (SLA) / Care pathway and therapeutics choices for Amyiotrophic Lateral Sclerosis (ALS)

V. 67 N. 2 (2018)
Ricevuto: giugno 20, 2018
Accettato: giugno 20, 2018
Pubblicato: giugno 20, 2018
sclerosi laterale amiotrofica, tracheostomia, percorso assistenziale / amyiotrophic lateral sclerosis, tracheostomy, care pathway
Abstract Views: 903
PDF: 19
Publisher's note
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Autori

Mario Sabatelli
mario.sabatelli@unicatt.it
Centro Clinico NeMO-Fondazione Policlinico Universitario A. Gemelli - IRCCS, Università Cattolica del Sacro Cuore, Italy.
La Sclerosi laterale amiotrofica (SLA) è una malattia devastante caratterizzata da una paralisi progressiva dei muscoli scheletrici compresi quelli degli arti, della deglutizione, della fonazione e della respirazione. La morte si verifica entro 3-5 anni nella gran parte dei casi e in un contesto di grande sofferenza a causa dei sintomi della insufficienza respiratoria. La introduzione di tecnologie innovative per supportare la funzione respiratoria con la ventilazione meccanica ha cambiato notevolmente l'approccio assistenziale alle persone con SLA. Il presente contributo intende approfondire, sulla base dell'esperienza maturata presso il Centro Clinico NeMOFondazione Policlinico Universitario A. Gemelli - IRCCS, alcuni aspetti problematici nel percorso assistenziale e delle relative scelte terapeutiche per i pazienti affetti da SLA.
----------
Amyiotrophic Lateral Sclerosis (ALS) is a devastating disease characterized by progressive muscular weakness, leading to limb palsy, difficulties in swallowing, speaking and breathing. Death occurs within 3-5 years in most patients in the context of significant suffering due to symptoms of respiratory failure. The availability of novel technology to support respiratory function by mechanical ventilation has profoundly changed the management of people with ALS. The present article addresses some critical aspects of both care pathway and the related therapeutics choices for patients with ALS on the basis of the experience of the Centro Clinico NeMO-Fondazione Policlinico Universitario A. Gemelli - IRCCS.

Dimensions

Altmetric

PlumX Metrics

Downloads

I dati di download non sono ancora disponibili.

Citations

Crossref
Scopus
Google Scholar
Europe PMC

Come citare

Sabatelli, M. (2018). Percorso assistenziale e scelte terapeutiche nella Sclerosi Laterale Amiotrofica (SLA) / Care pathway and therapeutics choices for Amyiotrophic Lateral Sclerosis (ALS). Medicina E Morale, 67(2), 157–174. https://doi.org/10.4081/mem.2018.533

PAGEPress has chosen to apply the Creative Commons Attribution NonCommercial 4.0 International License (CC BY-NC 4.0) to all manuscripts to be published.

An Open Access Publication is one that meets the following two conditions:

  1. the author(s) and copyright holder(s) grant(s) to all users a free, irrevocable, worldwide, perpetual right of access to, and a license to copy, use, distribute, transmit and display the work publicly and to make and distribute derivative works, in any digital medium for any responsible purpose, subject to proper attribution of authorship, as well as the right to make small numbers of printed copies for their personal use.
  2. a complete version of the work and all supplemental materials, including a copy of the permission as stated above, in a suitable standard electronic format is deposited immediately upon initial publication in at least one online repository that is supported by an academic institution, scholarly society, government agency, or other well-established organization that seeks to enable open access, unrestricted distribution, interoperability, and long-term archiving.

Authors who publish with this journal agree to the following terms:

  1. Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
  2. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
  3. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.