https://doi.org/10.4081/mem.2006.349

Biologi molecolari: hacker di dati umani? Bioetica e proprietà intellettuale nella ricerca bioinformatica

V. 55 N. 4 (2006)
Pubblicato: agosto 30, 2006
Bioinformatica, diritti di proprietà intellettuale, metodo shotgun, open source, copyright / Bioinformatics, intellectual propeaty rights, shotgun method, copyright
Abstract Views: 583
PDF: 1
Publisher's note
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Autori

Antonio Marturano
Antonio.Marturano@exeter.ac.uk
Centre for Leadership Studies, School of Business and Economics, Università di Exeter, United Kingdom.
L'oggetto del presente articolo è quello di studiare i limiti e le sfide dell'analogia tra le attività dei biologi molecolari e quelle degli hacker informatici. Partendo da questa analogia, l'Autore tenta di esplorare i diversi problemi etici e sociali che emergono dalla nuova genetica e dai modi in cui essa viene regolamentata. Viene mostrato in primis il background che giace dietro la proposta analogia tra hacker informatici e biologi molecolari e viene analizzato il senso per cui possiamo parlare di questi ultimi alla stregua di hacker informatici. Ciò dà il destro per analizzare alcune delle tecniche usate dai genetisti. In particolare è analizzato il cosiddetto metodo di sequenziazione Shotgun che spiega perchè i biologi molecolari possono essere visti come hacker di dati umani. Infine, l'Autore spiega perchè la filosofia Open Source usata in campo informatico potrebbe essere un buon modo per regolamentare la ricerca genetica e farmaceutica. Infatti, la filosofia Open Source darebbe la possibilità di una più equa redistribuzione delle opportunità di ricerca intorno al globo mediante l'accantonamento di regolamentazioni basate sulle licenze e con il ripristino dell'uso dello strumento legale del copyright nel sensibile campo della genetica.
----------
The objective of this research is to study the limits and the challenges of the analogy between molecular geneticists' work and hackers' activities. By focusing on this analogy, the Author aims to explore the different ethical and philosophical issues surrounding new genetics and its intelletual property rights (IPR) regulations. The paper firstly shows the philosophical background lying behind the proposed analogy and analyses the sense in which we can talk of geneticists; in particular, it focuses on the so-called Shotgun method for genomic sequencing. After having provided reasons for the proposed anaogy, the Author claims that the Open source philosophy used in the computer field would be a good way to regulate research in the genetics and in pharmaceutical field too. The Open source philosophy would provide fair distribution of research opportunities around the globe with the shift from patenting to copyright in sensitive fields such as genetics.

Dimensions

Altmetric

PlumX Metrics

Downloads

I dati di download non sono ancora disponibili.

Citations

Crossref
Scopus
Google Scholar
Europe PMC

Come citare

Marturano, A. (2006). Biologi molecolari: hacker di dati umani? Bioetica e proprietà intellettuale nella ricerca bioinformatica. Medicina E Morale, 55(4). https://doi.org/10.4081/mem.2006.349

PAGEPress has chosen to apply the Creative Commons Attribution NonCommercial 4.0 International License (CC BY-NC 4.0) to all manuscripts to be published.

An Open Access Publication is one that meets the following two conditions:

  1. the author(s) and copyright holder(s) grant(s) to all users a free, irrevocable, worldwide, perpetual right of access to, and a license to copy, use, distribute, transmit and display the work publicly and to make and distribute derivative works, in any digital medium for any responsible purpose, subject to proper attribution of authorship, as well as the right to make small numbers of printed copies for their personal use.
  2. a complete version of the work and all supplemental materials, including a copy of the permission as stated above, in a suitable standard electronic format is deposited immediately upon initial publication in at least one online repository that is supported by an academic institution, scholarly society, government agency, or other well-established organization that seeks to enable open access, unrestricted distribution, interoperability, and long-term archiving.

Authors who publish with this journal agree to the following terms:

  1. Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
  2. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
  3. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.