https://doi.org/10.4081/mem.2022.1210
Decisioni per la cura del bambino piccolo nelle fasi critiche e terminali della vita
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Autori
L'articolo si basa sull'analisi comparativa di tre documenti: la Mozione del Comitato Nazionale di Bioetica su Accanimento clinico o ostinazione irragionevole dei trattamenti sui bambini piccoli con limitate aspettative di vita, la Legge del 22 dicembre 2017, n. 219 recante Norme in materia di consenso informato e di disposizioni anticipate di trattamento e la Lettera Samaritanus bonus della Congregazione per la Dottrina della Fede sulla cura delle persone nelle fasi critiche e terminali della vita. Nella consapevolezza della loro diversità è possibile individuare alcuni nodi centrali nella cura del paziente pediatrico nelle fasi critiche o terminali della vita: il problema della valutazione della qualità di vita; le cure di base di questi piccoli pazienti, con particolare riferimento: all'idratazione e nutrizione; alle cure palliative pediatriche; infine, al ruolo della famiglia nell'assunzione delle decisioni in ambito pediatrico. Gli autori presentano anche i punti di concordanza che emergono dall'analisi dei tre documenti dedicando attenzione al bambino piccolo con limitate aspettative di vita: guarire se possibile, curare e prendersi cura sempre e umilmente, riconoscere i limiti della medicina.
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