https://doi.org/10.4081/mem.2001.716

Bioethical and biojuridical approach to the genetic counselling for Alzheimer's disease.

Vol. 50 No. 1 (2001)
Published: February 28, 2001
Abstract Views: 253
PDF (Italiano): 1
Publisher's note
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Authors

Lorella Garofalo
Vincenza Mele

The article, first of all, analyses the ethical aspects linked to the predictive medicine regarding the Alzheimer's disease (AD). Besides, the authors dwell upon the ethical significance of the role of the genetic counselling, particularly regarding the situation in which asymptomatic subjects to risk for AD ask for an available predictive genetic test.

In this case the ethical reflection is mostly problematic and involves different aspects: the use of safe and effective test in health care organisations (HCOs) with adequate standards of quality; the issues related to counselling (patient's autonomy, informed consent, psycho-social care); the professional education of the health care workers. Moreover, the authors show and comment the data of an investigation about the predictive test for AD and the HCOs where the test is performed.

Finally, the ethical and legal role of the health care professional is underlined, particularly about the elaboration of specific guidelines and the protection of privacy of patient's genetic data.

Dimensions

Altmetric

PlumX Metrics

Downloads

Download data is not yet available.

Citations

Crossref
Scopus
Google Scholar
Europe PMC

How to Cite

Garofalo, L., & Mele, V. (2001). Bioethical and biojuridical approach to the genetic counselling for Alzheimer’s disease. Medicina E Morale, 50(1), 41–59. https://doi.org/10.4081/mem.2001.716

PAGEPress has chosen to apply the Creative Commons Attribution NonCommercial 4.0 International License (CC BY-NC 4.0) to all manuscripts to be published.

An Open Access Publication is one that meets the following two conditions:

  1. the author(s) and copyright holder(s) grant(s) to all users a free, irrevocable, worldwide, perpetual right of access to, and a license to copy, use, distribute, transmit and display the work publicly and to make and distribute derivative works, in any digital medium for any responsible purpose, subject to proper attribution of authorship, as well as the right to make small numbers of printed copies for their personal use.
  2. a complete version of the work and all supplemental materials, including a copy of the permission as stated above, in a suitable standard electronic format is deposited immediately upon initial publication in at least one online repository that is supported by an academic institution, scholarly society, government agency, or other well-established organization that seeks to enable open access, unrestricted distribution, interoperability, and long-term archiving.

Authors who publish with this journal agree to the following terms:

  1. Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
  2. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
  3. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.